THE parents of a little boy who has a rare genetic condition need to find £5,000 in a matter of days to pay for treatment to stop him contracting the respiratory infection which almost claimed his life earlier this year.
Harrison Allen, two, has Prader-Willi Syndrome, a rare condition which means he has weak muscle tone, restricted growth and delayed development.
He is vulnerable to coughs, colds and chest infections which can be serious. His twin brother Matthew is unaffected by the condition.
In February, Harrison contracted bronchiolitis and spent weeks in Barnsley Hospital and Sheffield Children’s Hospital where he was in intensive care. Consultants at both hospitals agreed he needed preventative treatment this winter to stop him contracting the infection again.
But his parents Paul and Hayley, of Fullshaw Bank, Penistone, have not heard anything about whether funding will be provided by the NHS for the injections, which should be administered between October and February.
Read more in this weeks Barnsley Chronicle
